Month: September 2013


I am learning that there are multiple levels of disability for those of us with relapsing remitting MS (RRMS.)  The first level is called ‘Think’; this level comes right after the diagnosis before you really have any disability.  You think about what might happen, what the future might or might not look like, and you…

Read More →

Follow Up

OK, I cannot go to bed knowing I just put a depressing blog out there.  The point is, I am in limbo right now.  I’m between a possible cure and giving in to disability.  But the truth is, I can’t think of a single time I’ve ever given up.  I am not going to start…

Read More →

The Waiting Game

When I first got diagnosed with MS 13 years ago, I remember meeting a woman who was in an electric wheelchair.  She told me something that was very hard for me to comprehend.   She said she did not need the wheelchair, but she used it because it allowed her to save some energy to do…

Read More →