Category: Medicine

Balance

Balance is an important term for people with MS for many reasons. There is the physical balance that you lose which makes is hard to run, walk, and do yoga. For instance, I stopped running outside a while ago, when it got to the point that I fell every time. But luckily, because of the…

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To All My Followers

I have now moved up to Seattle for three months to start my treatment.  My blog up to this point has had two main purposes: to help myself figure out what’s really going on in my head, and to motivate others to turn their thoughts from the negative to the positive.  I will not take…

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Back with a plan. . .

I have been not posting for a few months now, per my lawyers advice, while we were waiting for a final rejection from the insurance company.   Well, we were trying to wait for them to cover it, but we ended up getting a final rejection.  Now that that’s over, I can freely write about whatever…

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Hurry Up and Wait

With the help of my family, I have decided to get an HSCT, or stem cell transplant.  This is a process that has been practiced for many years for blood related cancers and for MS, but the FDA only approves it for the treatment of cancer.  What this means for MS patients is that insurance…

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A Cure for MS?

I have not blogged about it yet because I am not exactly sure what is going to happen, but I  have made the decision, with my families help, to get a Stem Cell transplant.  I believe it to be a cure, and I’m not quite sure why it is not being reported about anywhere yet,…

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A New Way to Choose

I have been feeling sorry for myself the last two or three days because I am experiencing something my doctor thinks is a Pseudo relapse brought on by stress.  This means that my body is presenting all of past symptoms: pain, lack of coordination, my fingers not doing what I’m telling them to, and many…

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Name it. . .

Depression.  This is by far the scariest and most immobilizing symptom of MS I have had to deal with.  It is usually under my control, via by sheer will, tricks and tips I have learned, or medication.  But these things do not always work how they are supposed to.  And once you spiral all the…

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Mind over Matter

My new plan is to cut out as many drugs as possible and saturate my body with vitamins and minerals.  The thing about being on a steady stream of pain killers is that you become more sensitive to pain.  You also develop a tolerance.  This means you have to keep taking it, and you have…

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Living

At some point, you have to stop ‘surviving’ and start living.  As my health is slowly, but surely getting better, I have been focusing on how to feel better both physically, and mentally and I found my secret to happiness. The reason I used the word ‘my’ instead of ‘the’, is because it is not…

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Live as if . . .

When I was a young teen, I remember a very confusing conversation I had with my Grandfather after I had learned that he had cancer.  I told him I was sorry that he was dying and he responded by telling me that he did not know what I was talking about.  I started to argue;…

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Feeling Complete

I am both relieved and excited to share with you that I am feeling much better!  I know I have not been blogging much, but I have been in a really poor physical and mental state lately.  I am doing so much better after just nine days off my latest MS drug, Gilenya, that I…

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Warning: unreported side-effects of Gilenya

I have been having such bad symptoms that I thought I was in a 4 month exacerbation.  My skin burns like I have been scalded, and my fatigue at times is the worst I have ever experienced. The burning has gotten so bad that I am in tears by 3pm almost every day, I have…

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