Category: self-help

Mentally Disabled?

It was at an informational luncheon for MS that I met the first person to tell me she didn’t work anymore because of the reduced mental capacity she had due to the disease. This was in the beginning of my MS Journey; before I had many symptoms. I remember being in wonder at how someone…

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Feeling Good

I am feeling good.  I have gone out to exercise three days in a row now. I am going to keep it up. I do not get so tired that I feel like I’m going to die afterward, but I get tired in the evening, and that is OK. I do not feel guilty. I…

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Balance

Balance is an important term for people with MS for many reasons. There is the physical balance that you lose which makes is hard to run, walk, and do yoga. For instance, I stopped running outside a while ago, when it got to the point that I fell every time. But luckily, because of the…

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More Adjustment

  https://www.facebook.com/Multiple-Sclerosis-Awareness-1573486702872865/       I saw this ad for a sweatshirt on Multiple Sclerosis Awareness Facebook page. This all resonated with me deeply. The line that got me the most was, “I dream of a person I was.” I say this to myself in some form or another on a daily basis. “I wish…

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This is Me

Symptoms of True Depression: You don’t want to leave your bed Complete exhaustion Inability to stop crying Not caring about personal hygiene You don’t want to talk to anyone     Benefits of it as part of the disease: You can recognize what it is and why you have it Knowing why you have these…

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Decision Time

I have once again broken down to tears when I realize what large cognitive effects still remain from either the MS, or the transplant itself. There was a 5-hour “spell” where I lost consciousness after all. I was trying to help my daughter with her fifth grade math, and I could not figure out why…

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The Gift of Rest

My husband gave me the best gift today. He told me to sit down and do nothing. OK, maybe I should start from the beginning and outline my week for you. That way you’ll understand better why he would tell me not to get anything done. On Tuesday, I decided I’ve gotten my house unpacked…

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Amazing News!!!

Breaking news in Norway. HSCT now considered a part of the National treatment plan for MSBreaking news in Norway. This is amazing!  I am so elated for all of those in Norway this will help, but also very sad that I know the US will be far behind because we are such a litigious country!…

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My First Cold, and My First Bath

Last night I filled the bathtub up with delicious smelling water and bubbles, lit some candles and took a hot bath. That is something I haven’t done since February. I couldn’t because I have had my Hickman line in my chest and it hasn’t been safe. It was so relaxing; I just sank in and…

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The Ugly Truth of Recovery

I feel ugly and weak. It makes no since that I would harbor these ugly faults when I have had such a positive transformation. I should not be so vain that looking like a man with super short hair still bothers me. At least it is growing back. I should not be so proud that…

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First Run Post Transplant

Today I went on my first run post-transplant. It was a huge milestone for me. I have been waiting and waiting until I could. It’s part of how I identify myself. It’s part of how I ground myself. And it is the only time it is fairly easy for me to live in the moment….

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The Gifts We Take for Granted

I’ve had this blog in my head for over a week now, and I’ve been putting it off because I’ve been doing exactly what I’m blogging about right now, enjoying the gift of time. I have quit the waiting game.  This is not to say I know when or where I’ll be treated, yet.  I’m…

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Perspective is Everything

Last night, my mother told me she was proud of me.  She said she knows how hard it was for me to make the decisions I have in order to conserve some of my energy each day.  I have made the choice, and I emphasize the word, choice, to start using a handicapped sticker on…

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A Cure for MS?

I have not blogged about it yet because I am not exactly sure what is going to happen, but I  have made the decision, with my families help, to get a Stem Cell transplant.  I believe it to be a cure, and I’m not quite sure why it is not being reported about anywhere yet,…

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All Hands on Deck

When everything falls apart, it’s all hands on deck!  We all have good days and bad days, and then there are the days that start out really good and crash into the pavement at 90 miles an hour. This morning I woke up awake, refreshed, and with no pain or fatigue.  Then somewhere around 1…

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Don’t Over-Think it!

Something that has been keeping me very busy is that I have been asked by the National MS Society to give a speech on emotional wellness.  I am putting a lot of thought into how to say everything I want to while still keeping in mind that I want it to impact others so that…

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Stay Strong Until there is a Cure

I have been so busy lately I’ve had a really not been making time to blog.  The irony of this is that blogging has become one of the things that helps to ground me and keep me happy in the mist of all the uncontrollable chaos around me; so I decided to write a blog…

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Because I Can

I have always been into running, but I have not always been able to do it.   As someone with relapsing remitting MS, it is not always possible to work out.  I go through periods of weeks or even months where I can hardly get across a room, much less get to the gym.  This last…

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The Benefit of an Off Day. . .

With my latest goal of being “good enough,” I have found the freedom to pursue my goals without the pressure.  Without having timelines or defined obligations to meet, I find that I still try to get everything done; I just don’t feel as stressed out about it. Perfect example: yesterday at the gym, I had…

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Why I Blog

A friend of mine asked me if she thought she should share my blog with someone she knows with MS.  I told her that was the whole point of my blog, to reach others with MS or other difficulties and share what I have learned to motivate myself.  She told me she was worried because…

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Fall into comfort

The last of Summer has been brought in to the house so that we may enjoy it thoroughly before it disappears. Now I am looking forward to the many joys and comforts that fall brings. Warm baths and candles, and soft cozy blankets; hot tea and cocoa, and lazing in bed late.  Go ahead and sing it…

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13.1 Miles

As we approached the top of the hill to start the half-marathon, I abruptly stopped my nervous chatter.  Suddenly, I couldn’t breath.  What was I thinking?  I not only had MS, but I had recently been so affected by the disease that I had a hard time just making it through the day, much less…

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Chain of Hearts

Just when you think life sucks and you are feeling really sorry for yourself, something worse happens to someone close to you.  The only thing to do in situations like this is to hold together as a family and stay close to the ones you love, letting them know that you are there for them. …

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Becoming a Morning Person

Since my last bout with MS, I have found that I have to run early in the morning. I have never been a morning person, and my highest energy level has always been later in the day. Running in the morning has definitely been a progression and a very large adjustment for me. When I…

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Simplify and Go!

I believe everyone can be happy.  You  just have to find the little things in life that give you pleasure.  The trick for me is to always be moving forward, find a goal and stick with it.  I am happiest when I have completed a goal; whether it is finally organizing the junk drawer that has been driving me nuts, or…

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8 miles, and a little faith

This weekend my family and I stayed at what is said to be the longest beach in the world.  We had a fantastic time.  However, I did not get to run on the beach.  I was really looking forward to doing my long run for the week there, but the timing just did not work…

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A Bump in the Road

A bad day stinks, but it doesn’t have to ruin my mood.  I found this out today.  When I have a bad day, I have extra pain.  My arms are in pain and extremely irritated, and I can’t think straight, but I still have to live my life.  I still am a mother of three…

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